Fighting Stage 4 Leiomyosarcoma one day at a time

Hello Everyone,

Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.

A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.

MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.

Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.

Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!

We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"

Saturday, December 31, 2011

Rockstars and Villains of 2011

We're still HERE!

* Greg Burzynski- I must say he has gone above and beyond in the treatment and care of MB. If I email him at 5pm CA time, which is 7pm TX, he calls me within the hour to offer solutions to MB's discomforts. Just yesterday, I emailed him with concerns and he wrote back twice even though he was at home. Earlier in the week, he wasn't happy with MB's Pet Scan so he changed some of her treatment meds and dosages. His actions show that he is actually trying to save MBs life. Doctors at Kaiser just want to give her pain pills. I'll let you decide who is the better doctor.

* The Burzynski Clinic-The staff at the clinic is also amazing. On December 23rd, I called and let them know MBs legs were swollen. Right away they had us get an MRI and Ultrasound, they wanted to make sure she didn't have blood clots or that any of her lymphnodes were obstructed, when MB expressed the same concerns to her doctors at Kaiser two months ago, all they ordered was the ultrasound, no MRI. The day after, on Christmas Eve, the doctor from the clinic called again to see how MB was doing, it was kind of funny because I was in the middle of our party and the doctor kept asking questions and being super thorough and I was like she's fine now I gotta go!...Thats how attentive and thorough the doctors at the Burzynski clinic are. I give the clinic and their doctors 5 stars! great job keep up the good work guys!
*Yazzy Fresh- This woman has been the best publicist to the Vargas family ever, she shared our story everywhere and it was because of her that we met the lawyers.
*Our family and friends- We have had so much emotional and financial support from our family and friends.
*Mrs. Howard and Mrs. Alexander- I highlight our neighbors because they have done and given more to our family than some of our actual family members. Mrs. Howard visits with MB every Friday without fail and I have a sneaking suspicion Mrs. Alexander had something to do with the anonymous check. It always trips me out when your neighbors do and give more than your own family. I've talked with friends about this phenomenon and they have shared that when their family needed help the first to help were the ones you'd never expect. I agree. Mrs. Howard and Mrs. Alexander are not just neighbors their family because they treat us like family!
*Taliboo- even though it didn't workout with him, he kept me sane in TX and for that I will be forever grateful.
*Irene Chavez- I know what your thinking,"OMG, isn't she the VP of Kaiser, how is she a rockstar???".Well, she has been very nice. She prays for MB and at least tries to help. At the end of the day I know her hands are tied by the powers that be. She is another Kaiser casualty. Remember, I don't hate Kaiser employees I hate the organization that ties their hands. Irene was a rockstar because when we asked for an MRI and Ultrasound she moved mountains and made sure MB had both tests done that same day. See I give credit where credit is due.
Donor's- Everyone who has or continues to donate to MB. WOW. Thank You from the bottom of our hearts, you guys make it all possible. Treatment is expensive to say the least and without you MB would have stopped her treatment a long time ago. You are saving a life!
Protester's- These people didn't just talk about it, they were about it, and stood hours in the cold for a good cause!
The Media-If it wasn't for them, MB's story wouldn't have gone national. MB says her favorite piece was the one Robert Handa did at FOX. He made sure to show the struggles with Kaiser and was accurate and thorough in his story telling. MB gives you the Emmy Robert!
Cousin Rosa- Even though sometimes we clash, and she annoys me and I'm sure I annoy her;) (she can be like the older sister I never knew I wanted), she has the biggest heart and is MBs numero uno BFF, she comes to the house regularly and gives MB body talk therapy and brings us cool information and takes us to  new therapies that we never knew existed, her smarty party butt is actualy very useful!. Love You cousin!


Kaiser Hospital Santa Teresa- Dealing with them and their politics has been a nightmare to say the very least.We've dealt with Misdiagnoses, incompetent doctors, politics, delays in care and just today they sent us a 10,000 dollar claim, that they are thinking of not paying. I know, they would.

yup, thats about it, everyone else has been really great with us!

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