Fighting Stage 4 Leiomyosarcoma one day at a time

Hello Everyone,

Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.

A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.

MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.

Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.

Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!

We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"

Sunday, December 4, 2011

Reunited and it feels so good....


He's the Yin to her Yang

My second family minus one but he was there in Spirit;)

I was the flower girl 25 years ago, they donated their dollar dance to MB. Super Amazing couple;)

            
Chiveto is on my right and our big bro's are behind us, they look like our body guards then but they loved picking on us;)















As soon as MB walked through that door PB could not stop hugging her, his face lit up instantly. When she sat down and made herself comfortable, he sat right next to her as close as he could and could not stop touching her face, hands and feet. He was in heaven, his Prozac was BACK!
 MB’s illness has affected all of us but most of all PB (Papa Bear).  When I worked at the American Cancer Society I would hear stories of women whose husbands left them when they were sick. PB has been an exceptional husband and father throughout this whole ordeal. He confides in my Godmother frequently and told her that sometimes he just sits in his work truck and cries as loud and as hard as he can. One time he was crying so loud that a passerby actually knocked on his window and asked him if he was OK. Oh Papa Bear, he’s really sensitive below that macho man exterior.
MB and PB are soulmate’s. They met when MB was 16 and PB was 20. They dated long distance for a year. PB would drive from LA to San Jose to visit MB on a regular basis. One day, she called him up and his uncle answered the phone, he asked her if she was the girl in the red car or the blue car? MB quickly let him know she didn’t have a car and broke up with PB right away. Yeah, PB was a player. Four years later, after not having spoken or seen each other, MB and PB ran into each other at a random bus terminal in Mexico. Three months later the two were married and the rest is history. When I asked PB why they were married so quickly PB said he just couldn’t let her go again. Their Love is Epic! I’ve never settled for any Man because of the standards PB set. He’s handsome, charming, loving, charismatic and hardworking, a very rare breed of man. His only fault is that he can be grumpy and negative, nobody’s perfect.
Saturday, I decided to go to my uncle’s 25th wedding anniversary. I was tired as hell but I just couldn’t miss out on a chance to see all my cousins.  My Godparents live in Livingston and they are my second family. All my God brothers and sisters are like my real brothers and sisters. I love seeing them and their kids. When I was a kid we would go over every summer and sometimes my parents would let me stay a whole week. My God brother’s favorite pastime was to torture me and make me cry except the youngest one. I called him Chiveto, his friends called him Balooga but his real name was Luis Alberto. We were the same age and he knew all too well about the bullying, he was very light and his brothers would call him white trash, they would. Chiveto and I invented our own games and teamed up against the big bullies. Ten years ago he was murdered  and none of us have ever fully, or will ever fully recover.
The uncle who celebrated his 25th wedding anniversary is My Godmother’s brother. I remember when he first got married, I was the flower girl and Chiveto was the ring bearer. How I wish we could have taken a picture together 25 years later. Who knows why God does things. All I know is on this last visit I grabbed one of the many pictures of Chiveto and asked for his help with MB. I know he’s close to the big guy and can probably put in a good word. He is our Angel;)

3 comments:

  1. Hi,

    My name is Marie. I work with Christina who is a friend of Mariela's. She sent me the website information. My best friend whom I live with has Stage 4 Metastatic Breast Cancer. Her prognosis is like your mom's. She was given six months to live.......in January, 2012 it will be three years. Her cancer spread to her brain, lungs, chest wall and lymph nodes. Anything is possible when you have the love and support of your family and friends. Deb has a deep faith in God. I have become Deborah's voice, her advocate....I have different information which can assist with your financial expenses. Please drop me an e-mail at angelam1966@yahoo.com. I would like to share it with you. My prayers are with you and your family. Marie

    ReplyDelete
  2. Wow, you are amazing for being there for your friend. It is a hard rough rode and the patient can't do it alone. You are her Angel!...I have emailed you and hope we can keep in touch. thank you for your words of support!

    ReplyDelete