Fighting Stage 4 Leiomyosarcoma one day at a time

Hello Everyone,

Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.

A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.

MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.

Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.

Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!

We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"

Thursday, December 29, 2011

Kaiser is on vacation....the problem is MB's cancer isn't.

Irene Chavez was supposed to call us with a resolution to the meeting Wednsday. She called, but there was no resolution, it turns out two other guys were supposed to call with the final decision today. Irene called again today and apologized for the two guys not calling, they are on vacation until Tuesday. Kaiser never fails to impress me with their awesomeness! I very politely told Irene that unfortunately, MB's cancer continues to grow and nature forgot to remind it to take a Christmas vacation. MB's doctor at Kaiser has pretty much stopped treating her with anything besides pain killers until the final word comes down from the big bosses.

Welcome to the beauracracy that is Kaiser. MB has been given the run around for about a week now, part of me wonders if they are stalling just to see if maybe they'll luck out and she'll die and then maybe they don't have to deal with her anymore. The problem with that is that if anything happens to MB they will have to deal with me, and my awesomeness, and my family and my protesters and my big mouth.

Again, I feel bad for Irene, she seems to be wanting to help and is very nice and great about keeping us updated but nothing is being done.

TRADUCCIÓN AL ESPAÑOL:Kaiser está de vacaciones .... No así, el cáncer de MB.
Irene Chávez se suponía que nos llama con una resolución de la reunión del miercoles. Llamó, pero no había una solución, resulta que otros dos chicos tenían que llamar a la decisión final de hoy. Irene volvió a llamar hoy y se disculpó por los dos chicos que no llamarón, están de vacaciones hasta el martes. Kaiser nunca deja de impresionarme con su genialidad! Yo muy amablemente le dijo a Irene que, por desgracia, el cáncer MB sigue creciendo y la naturaleza se olvidó de recordar a tomar unas vacaciones de Navidad. MB médico de Kaiser prácticamente ha dejado de tratarla casi con nada, además de analgésicos hasta la última palabra de los grandes jefes.

Bienvenido a la beauracracy que Kaiser. MB se le ha dado una vuelta alrededor de alrededor de una semana, una parte de mí se pregunta si se están frenando para ver si tal vez van a suerte y se va a morir y entonces tal vez no tienen que lidiar con ella. El problema con esto es que si algo le pasa a MB que tendrán que tratar conmigo, y mi pavor, y mi familia y mi manifestantes y la boca grande.

Una vez más, me siento mal por Irene, que parece ser que quieren ayudar y es muy bonito y bueno de mantenernos actualizados, pero nada se está haciendo.

6 comments:

  1. "Que sigue La Huelga" "Si se Puede"....."Hell Hath No Fury like the Scorn of a Woman"!!

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  2. That is ridiculous, and unfortunately you are not the only person I have heard recently dealing with issues re: Kaiser and what appears to be their incompetence or apathy. Healthcare in America seems to be turning into more and more of a joke, and unfortunately the people who pay for it the most are the ones who can least afford to, whether it be financially or when they are ill and at their most vulnerable. Kaiser (as well as other health care "farms") should be ashamed of themselves. Huge props go to you for all you have been doing for your mom, more and more people need to take a stand when faced with such idiocy!!!

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  3. My wife used to have Kaiser coverage in Modesto but started having issues regarding our coverage. The insurance quote says a certain coverage but they seem to trow in hidden fees. When to the E.R was the only one there still took over 45 minutes. We ended up switching to Anthem Blue Cross and the difference is day to night. I thought Kaiser was a good hospital but there more like China toys good looking in the outside but a piece a shit in the inside. I will continue to forward your blog. God Bless

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  4. Elena Victoria Mendoza zepedaDecember 31, 2011 at 8:15 AM

    Más les vale que se pongan las pilas y den una solución expedita y muy, muy rápida... porque eso que está sucediendo son armas en su contra!!! un gran saludo desde México, de todos los seguidores de esta gran e importante historia,!!!!! Besos y abrazos a MB. Atentamente:
    Elena Victoria Mendoza Zepeda

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  5. I agree with all of you, dealing with Kaiser has been a nightmare and thats putting it kindly.

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  6. Wow! I'm so proud of my company Chase (one the biggest banks) for dropping Kaiser from the health plans they offered to its employees. Personally I am disgusted by Kaiser. I hope they get it together!

    -Ada

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