Fighting Stage 4 Leiomyosarcoma one day at a time

Hello Everyone,

Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.

A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.

MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.

Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.

Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!

We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"

Friday, December 2, 2011

I had the time of my life and I've never felt this way before.....



 


Our fantastic nurse Amanda, We are going to miss her!

MB dreaming of PB

Dr. Yi and Ana discharging us....Happy DAY!


I almost cried when I kissed Taliboo goodbye at the airport….almost. I didn’t, because I’m cooler than that. MB met him for the first time today and definitely liked him. She said, “he’s soooooo sweeeet”. She really appreciated the fact, that even after working the graveyard shift and not having slept a wink, Taliboo was still nice enough to drive us to the airport at noon. He’s the BEST Texas BOO ever. I will definitely keep him in my little black book as my 713 Ho… just kidding! Actually, as soon as we got to our gate I deleted his number. I just don’t want to get my heart broken.
The ride over to the airport was pretty hilarious. As soon as we stepped into Taliboo’s car Taliboo apologized for the mess, his car was actually immaculate, as soon as he said that, I KNEW MB was going to say something about my messy car so I beat her to the punch. I yelled, “MB, don’t even think of telling him about my car. MB exclaimed, “ I was just thinking it and you called YOURSELF out, YOUR BAD!” she would, I need to stop teaching her cute catch phrases.  MB was analyzing his accent and telling me it wasn’t that strong. I don’t know why but I hear a heavy accent . When I asked her if he looked Arab, she said ,”no, he’s just hairy”. She also told him I call him Taliboo behind his back. Luckily, he already knows I call him Taliboo so it was ok. I love how MB isn’t afraid to put me on blast. She thanked Taliboo for keeping me company while he got us a cart, he HUGGED MB goodbye and told her that he wished nothing but the best for her, he kissed me and went on his way.  MB thinks I should definitely try to make something work with Taliboo. She Loved him!
The last three weeks have been like a dream. There was a lot of anxiety at our house before we left and while we were gone. Travelling with someone who has stage 4 cancer and is given a couple more weeks/months to live is no joke. A Lot could have gone wrong while we were away. We took a HUGE risk by flying to Texas in MB’s delicate condition.  Baby sis and Baby Bear bared the burden of grumpy Papa Bear, his nerves were on edge the whole time we were away and that makes him very cranky and kind of unbearable.
Not only did nothing go wrong, but everything seemed to magically fall into place for us. From the very beginning we were hooked up.  Everyday we were here, I witnessed the power of all of your prayers, they were guiding us to the right people, the right places , the right discounts. . The visits to the clinic were always smoothe and the staff was always nice. I remember one visit when MB was telling our Russian Physician Assistant, Ana, that she was going to kill her with the costs of all the medications, Ana, in her very heavy, very Russian accent simply said, “No veee don’t kill you here, veee kill cancer”. Ana is sweet but not very funny, kind of dry, but I think that was her attempt at a joke.
Everyone keeps saying that I’m awesome and MB calls me her little Angel but I’m just doing what a daughter is supposed to do for her mother. I Love MB more than anything , that Love  gives me the strength to keep fighting for her. We joke, that now I’m the MB and she is my baby. Let me tell you, somedays it feels just like that. Just travelling through the airport with her is a pain in the booty! I have to carry all her bags because her back hurts and she has to pee every 15 minutes. I’m no saint. I get annoyed. Sometimes, I yell at her to stop drinking so much damn water! I’m trying to check us in and she HAS to pee, I’m trying to get us past security and she HAS to pee! I try to check my FB while we are waiting at the gate and she HAS to have her crackers! I’m telling you it’s like travelling with a two year old! I feel bad but I’m not used to being so needed by another human being. I actually feel like her MOM. I keep telling her that I’m going to give her away, now that her blog is taking off I’m sure someone wants MB. She told me she’s going to put an ad out that says, “WMV for sale”. I asked what a WMV was and she’s like, “WILD MARIELA VARGAS”. She would!
It’s crazy how the dynamic between us has changed. She’s like my little Baby Bear and I have to protect her, she even looks like a baby with her bald head. I have to admit, even though I’m tired as hell andI want to spank her on her BOOTY, there is an immense satisfaction that comes from caring for another human being. I feel good when I see that her symptom’s are improving. I like seeing her smile and crack jokes . I love listening to her when she tells me she’s gonna beat me, or  when she tells me that she’s gonna slap me across the face if I don’t stop being such a smart ass! I feel a sense of accomplishment when she is thriving. I think to myself,” I did that” and no  matter what happens I will NEVER live with any regrets, because I know , in my heart, that I’ve done my best for her, just like most of you would for your MB’s.  Yes, yes, Y’all I just had, what Oprah would call an “AHAH moment”!....I still can't stand babies on planes!...there should be a law against that or baby Nyquil so I don't have to hear their crying!
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