Fighting Stage 4 Leiomyosarcoma one day at a time

Hello Everyone,

Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.

A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.

MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.

Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.

Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!

We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"

Monday, December 26, 2011

The meeting

Protester of the day Friday!!!!
The meeting at Kaiser went as expected, nothing was resolved and part of me feels like they just did it to say, "they had a meeting with us". Irene Chavez was nice, now lets see how effective she will be in solving our problems. It was pretty cool to have two lawyers at the meeting. They kept us on point and helped guide us through by keeping us logical and factual.

I feel bad for Irene, she's only been on the job 6 months and she already has to deal with a whopper like Maria Vargas, Welcome to Kaiser Irene;) Maybe this will encourage Irene to make some changes, perhaps longer appointment times, more qualified doctors and thorough check ups, heres hoping.The one thing that was resolved at the meeting was that the fat security gaurd thats been stalking MB will finally cease and desist. He thought he was so sneaky following her around during her appointments. At this point Kaiser is more of a threat to us than MB is to them. Whats MB going to do, she has tumors all over her body, is it really necessary for security to suddenly show up at all of her appointments. Its also a HIPPA violation for him to know when she is going in.

After the meeting my lawyers drove me home, I changed my shoes and went to the protest. My cousin showed up with his son. The little guy is only 1.6 months and won the protester of the day award! Occupy San Jose also came to the protest and they had the best chants ever! Some of my faves include: "Lets get wiser occupy Kaiser", Hey Hey Ho HO corporate care has got to go"

Traduccion al español:
La reunión en el Kaiser fue como se esperaba, nada se resolvió y parte de mí se siente como si sólo lo hizo para decir, "había que reunirse con nosotros". Irene Chávez estaba muy bien, ahora le permite ver la eficacia de ella estará en la solución de nuestros problemas. Fue muy bueno tener dos abogados en la reunión. Nos tuvieron en el punto y ayudó a guiarnos a través de mantenernos lógica y objetivamente.

Me siento mal por Irene, que sólo a estado en el trabajo de 6 meses y ya tiene que lidiar con una mentira como Maria Vargas, Bienvenido a Kaiser Irene;) Quizás esto anime a Irene a hacer algunos cambios, tal vez más horas de las citas más calificados los médicos y los planos chequeo cuidadoso. Una cosa que se resolvió en la reunión fue que el guardia gordo de seguridad no este acechando MB finalmente cese y desista. Pensó que era tan astuto siguiendo a su alrededores durante sus citas. En este punto, Kaiser es una amenaza mayor para nosotros que MB es para ellos. ¿Que es MB va a hacer, que tiene tumores en todo el cuerpo, ¿es realmente necesario para la seguridad para mostrar de repente a todas sus citas?. También es una violación de HIPPA para él saber cuando va ir.

Después de la reunión de mis abogados me llevaron a casa, me cambié de zapatos y se fue a la protesta. Mi primo se presentó con su hijo. El pequeño es sólo 1,6 meses, y ganó el manifestante de la concesión del día! Ocupan San José también llegó a la protesta y que tenía la mejor canta siempre! Algunos de mis favoritos son: "Vamos a ocupar más sabio Kaiser", Hey Hey Ho HO atención corporativa tiene que ir "

No comments:

Post a Comment