Fighting Stage 4 Leiomyosarcoma one day at a time

Hello Everyone,

Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.

A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.

MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.

Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.

Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!

We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"

Thursday, November 17, 2011

Just an Extraordinarily ordinary Day;)


Mom thinks EVERYONE should read my Blog because I work so hard on it!...OH MOM;)

Dr. B’s practice is unique because they attack cancer from all sides, not only do you get (Gene Targeted) FDA approved meds and Dr. B’s special medicines you also get an hour long, one on one appointment with a licensed nutritionist.
I learned so many great things in that hour. The nutritionist was telling us that 70 percent of cancers can be prevented with nutrition alone. WOW. Basically people with cancer should avoid all red meat, eat 5 small meals with healthy proteins and complex carbs, also 1/3 cup of nuts is recommended and a wheat grass shot every morning. There is obviously more to it but those are the basics.
Today was one of those simple days, no surprises or unexpected encounters, just a nice lunch with Mom, followed by her doctor’s appointment. Days like these make me feel very lucky to still have my Mom and joke with her, call her annoying and baldy. I’m not evil, that’s how we play. Don’t worry; she throws it right back at me. During Lunch, she decided to remind me that my Ex DUMPED me and that I cried for him for two years. She tells me i'm dirty, annoying,lazy and cute.Thanks for keeping it real Mom!
Many Cancer Survivors say they are thankful for having had the disease. I get it, being terminally ill and having a terminally ill loved one forces you to savor every single second that you spend with them. Every laugh, word, hug, smile becomes so much more intense. Every fiber of my being feels like being here is right. From the moment we got here everything fell into place. Thank You for your prayers, I feel and see them working all day every day.  

6 comments:

  1. HI Mariela,
    I just read your blog and couldn't agree with you more about your comment: get it, being terminally ill and having a terminally ill loved one forces you to savor every single second that you spend with them. Every laugh, word, hug, smile becomes so much more intense.!!
    I believe in this theory and try to live in the moment as much as possible. I feel that's the only better way to live in the moment rather than sit and worry and complain about things beyond your control.,
    What do u say?

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  2. I agree Shriya, even if we are healthy and the people around us are healthy they don't stay that way forever so we have to try to enjoy eachother as possible no matter what position we are in. I am in Awe of you of Mitesh for being so strong everyday, you guys are my HEROS!

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  3. Your mother is a strong woman and I admire how you stay strong for her as well! Continue to keep your head up and remember God is the ultimate healer :)

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  4. Godspeed Mariela!! Take it Day by Day and Enjoy every single second you have with HER !! I am a friend of Ada's and I will use all of my FB accounts to click on this link!! I am PROUD to know you vicariously through Ada and am pulling strong for MB to WIN this BATTLE and the WAR against CANCER !! My mother had Colon cancer and it was misdiagnosed for over a month and a half. She ultimately died due to complications with surgery for a compacted bowel…..she didn't want to visit the doctor after she had colon cancer as each time she thought it had reoccurred somewhere else. She was always afraid. While I would still love to have her here I am glad that she is in no more pain and suffering no more. I applaud you for your bravery in what you have done for her and continue to do……I wish I had done the same. I feel like I let her down and that If I had quit my job and went to take care of her perhaps she would have lived longer? I'll never know….I still talk to God about her periodically and feel somewhat guilty. I am SO very proud of the two of you for going all the way and doing everything you can to LIVE. I am AMAZED and in AWE of you BOTH. I will now read the blog as often as you post and can't wait till you get back and I would love to meet MB and You in Person someday……..Please take care and again Godspeed :-) Chin Up and Chest Out Chica !!

    Te Agradesco Mucho por su's palabras !! De su vos ah los oyidos de Dios ! I am sure tis mispelled but I think you understand……..<3Teresa<3

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  5. Amanda, I look forward to your smile everday at the clinic,I am always slightly dissapointed when the other girl takes our vitals but I am still so very happy that we met, I hope we can one day be a success story you share with other patients.

    Theresa, I am very sad to hear about your mother but be happy she didn't suffer too long, only God knows why or how he does things. There were days that my Mom was in so much pain, that I would get angry at God and tell him that if he was gonna take her to take her quick and if he wasn't then just give us the tools to keep fighting and alleviate her pain. My prayers were answered within a week of that prayer her symptoms had been alleviated through radiation, 6 months later God brought us to Texas. Never doubt the doubt or Love You had for your mother, maybe your mother has guided you to our page to help us. Love is universal and one good deed spreads like fire. Thank You for your support we can't wait to meet you either;)

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  6. Mariela as I read your blogs my eyes fill with tears but just to see your mom smile in some pictures it brightens my day :) Ever since I first started reading it I cant stop now I catch myself get on here daily just to see her progress. I will keep your family in my prayers. I love u guys even if we havent been as close as Id like.

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