Fighting Stage 4 Leiomyosarcoma one day at a time

Hello Everyone,

Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.

A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.

MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.

Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.

Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!

We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"

Friday, November 18, 2011

Just one of those days that a girl goes through....

Mom sleeping with Don King, thats what I call her wig;)
Today was kinda blah, we just had a doctor’s appointment.  Mom was given a new medication and a new billL. Her cough has come back which freaks me out but I think it’s only because she’s been worrying about her financials. I try to tell her not to worry but I know it can’t be easy dropping thousands of dollars a day.
Instead of raising money for huge organizations that only sponsor big pharmaceutical clinical trials why can’t there be organizations just for patients to pay directly for whatever therapy they want. That’s why I never donate to the American Cancer Society or any other BS cancer organization because most of the money doesn’t go to the patients. Trust me I’ve worked there, I know where the cash goes and it’s BULLSHIT!
Unfortunately in America it’s more cost effective for people to die. No one really cares until it’s your Mom, Dad, Sister or Brother in trouble. I know I didn’t.
Today for dinner I just ate alone and let Mom rest. It was nice to get away for a second and be depressed. I try to stay positive but some days you just have to give in and have a good cry fest with yourself and look pouty. I text my teacher, he hasn’t text me back. He’s probably busy caring for his sister and 3 year old nephew. As much as I try to turn this into a mini-vacate its not, It’s doctor’s appointments and sickness. Our New Zealand friends left, so I can’t hang out with them and understandably Mom only has the energy for doctor’s appointments.  Tomorrow will be better!
Posted by at

2 comments:

  1. WhateverNovember 20, 2011 at 11:26 PM

    You really shouldn't hold your emotions in you can cause yourself harm. If you every need to talk to someone call up one of your good friends or me, it doesn't matter you need to let out your tears they'll only make you stronger! Take care beautiful

    ReplyDelete
  2. MarielaNovember 21, 2011 at 1:30 PM

    Thank You, I try not to hold my emotions in but I have to stay strong when I am around my Mama Bear. Don't worry I let it all hang out when I'm alone;)

    ReplyDelete

Subscribe to: Post Comments (Atom)