Fighting Stage 4 Leiomyosarcoma one day at a time

Hello Everyone,

Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.

A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.

MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.

Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.

Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!

We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"

Tuesday, November 15, 2011

Burzynskyland



Ali and Frasier aint got nothing on these two fighters
  




I turned around and she already had them in a circle holding hands, fastest ive seen her run in months!
  
Today, as we were leaving, my Mom saw a group of nuns come out of a van(not the beginning of a dirty joke),  as soon as she spotted them I knew exactly what she was going to do. Right away she gets bright eyed like a five year old who sees Cinderella for the first time, she runs to them just like a kid and makes them all get in a circle to pray for her, she would! As she was doing this I took a picture, I would! When she got back from her prayer session I was like, “Mom, I knew you were going to do that!”  She was like, “How often do you see a group of nuns, of course I’m going to ask them to pray for me.”
We met a woman from New Zealand who was travelling with her BFF. She had an advanced form of Lung Cancer and was given 3 weeks to live 4 years ago. If you met this woman you wouldn’t be surprised that she beat the odds because she has such an amazing energy and presence, both her and her friend do, they both fill the waiting room with laughter and cheer. She told my Mom that a combination of chemo, nutrition, and meditation have kept her going. What was most surprising about her story is that her friend has offered to pay for her trip to America and her treatment.  I was floored, this guy isn’t even her husband; she said she was happily married to someone else, just a friend. I guess if you own your own Ski Resort, which he does, you can afford to pay for stuff like this. We exchanged numbers with Georgie and Christian and will definitely be doing dinner with them before we leave.  
  On a technical note, Mom began her first gene targeted therapy today. She’s taking a medication called PB, it obviously has a longer name but that’s the acronym,that attacks tumors on a cellular level and makes it easier for other medications to kill and break up the tumor. Her new doctors are approaching her disease with gene targeted therapy. Their goal is to stop and shrink her tumors. Once they get her blood and caris results back they will choose medications that match up with the markers present in her blood and design a specific treatment just for her. I have a good feeling about this.

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