Fighting Stage 4 Leiomyosarcoma one day at a time

Hello Everyone,

Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.

A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.

MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.

Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.

Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!

We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"

Tuesday, November 22, 2011

See you later.....

This pic is just for you ADA SILVA!
I'm not a camera whore, everytime my MB gets a new med, I make her take my picture, it distracts her...I know i'm sneaky;)
Our lovely nurse Brought over a patient who's only been doing treatment 2 months and has already seen a 70 percent decrease in her Tumor Markers!
I know I look like a Tijuana hooker today with the red lipstick, I wear red on gloomy days to make Mom laugh, trust me she always has something to say!



God always sends us Angels, today he sent us Joan to brighten up our spirits!

The staff at Dr. Bs is incredible!....One of our nurses, Amanda, took a liking to us and made sure to bring over Joan, Joan has been fighting stage 4 colon cancer for 5 years, MD Anderson told her there was nothing more they could do so she came to Dr. Bs and is THRIVING! After only 2 months her tumor markers have dropped 70 percent! She said she'd never seen such a drop at MD Anderson,
We've noticed a trend so far, everyone we meet is stage 4,they have been told, by their oncologists, to go home and make the best of the time that they have, they get a kick in the ass and a "See you later...but probably not", by "modern medicine".
Ironically, what Dr. B is doing with his gene targeted therapy, seems a million times more modern and advanced than what we get at home.
I hope that anyone who is battling this horrific disease and is told to go home and die a slow painful death, FIGHT, just keep fighting, keep searching keep loving and never ever ever give up. Never be discouraged by your finances, where there is a will there is a way!

 

2 comments:

  1. Really Marielita Really? I will let the Fuggs/Sweat combo slide because you're in TX. Don't come to CA like that. LOL. Love you guys tons.
    -Ada

    ReplyDelete
  2. Yeah really!...I'm bringing sexy back with my FUGGS!

    ReplyDelete