Fighting Stage 4 Leiomyosarcoma one day at a time
Hello Everyone,
Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.
A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.
MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.
Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.
Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!
We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"
Good Morning M&M's…
ReplyDeleteI am in a shock and awwe state of disbelief right now!! I held such High Esteem for St Judes and the work they do or did……How very very sad that with so much time and money invested in their research that they are still using those old archaic forms of treatment when there is Dr B who has been doing this for some 30 years already!! WHY aren't they getting on board the "survival ship" and learning from a True Master? C'mon this man survived Nazi Poland after all!!! God helped Him out of that BAD situation so that he could go forth and help others out of their's!! An angel truly sent from God to help enlighten others as to his discovery about this whole "Cancer" diagnosis and treatment path. I can't tell you how shocked I am, that really was the first time that I have heard anything negative about St Judes and Marlo Thomas the Founders daughter was just on TV asking for more money as "no child is turned away for their inability to pay"? Maybe that is what made me feel so warm and fuzzy inside……I think that Dr B should have some sort of program for the less fortunate that also want to live…..not sure maybe he does? I am still stuck on the woman that was there and found that she couldn't afford the "treatment to live" and I think that was the saddest part of the blog in that she had a 3 year old at home. I am not sure why God chooses those people but I do know that it's His Game plan and we are not always aware of "His Bigger Picture"? I am off to shower and work and will be smiling all day knowing that MB is part of God's Bigger Picture and I have never been happier knowing I will meet his Miracle one day :-)……….<3 Peace and Love <3
-Teresa-
Just to be clear, St Judes did treat this lil girl free of charge, but yes the methods they used to treat her rare brain tumor were not very updated, St. Judes has a 0 percent survival rate with these tumors in children, Dr. B has a 15% survival rate treating the very same type of tumor.
ReplyDeleteI am sure the treatment was Free but what good was that when they did more irreparable damage to her? Gosh, so exasperating!! I do so feel your frustration!! I currently have Kaiser and I am going to Ask my Dr What/When/Where and How!! I will let you know his answer!! BTAw, you cant get sued for Spreading the Truth. No Liable or Slander case there :-) I will go to Kaiser with you!! My mother was Misdiagnosed as well and it wasn't Kaiser, hence my distrust with Dr's in general. I can't believe that the Kaiser Dr that won't prescribe the drugs because they are Toxic doesn't realize that Chemo/Radiation do the same damage??? Take it to the Media-Brilliant!!
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