Fighting Stage 4 Leiomyosarcoma one day at a time

Hello Everyone,

Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.

A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.

MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.

Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.

Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!

We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"

Tuesday, November 29, 2011

How far will you go for those you LOVE.....????


She loves making new friends at the clinic!
 

MB working the room, she forgets that her back hurts when she is at the clinic, I think they are talking about how much they hate Kaiser, true story;)



I stood in front of MB, leaned right over her face, looked straight into her soft brown eyes and said, “YOU ARE GOING TO LIVE!”, she whispered back, “I am going to LIVE”. We were both inspired because we had just spoken to a woman from Sweden. She was diagnosed with TWO  inoperable brain tumors! Like many of the people we’ve met, she was given 6 months to live, no “traditional” medications could be used on her tumors. She had heard of Dr. B from a friend in Oklahoma who knew a man whose wife had been cured by the treatment. The woman from Sweden began treatment a year ago. Today 90% of the aggressive tumor is gone and the stage 2 tumor is practically non-existant. The woman gave us her number and said that if we had any questions we could call her. I feel like God places these people on our path for a reason. Meeting survivors inspires MB, almost immediately you see her eyes shine and her mood change. One of the patients in the lobby put it best, she said, ” I know we are all right where we need to be, all we have to do is continue to have faith and stay strong for our loved ones, the rest will take care of itself”, AMEN to that sister.
Upon leaving the clinic, we met a Man whose 5 year old daughter was discharged from St. Judes a month ago. When he found out his daughter was sick he sold his construction business, sold his house and moved his entire family to Tennesse.  St. Judes just radiated her brain  tumor and ended up doing more damage then good. Doctors there, told him his daughter had 3 weeks to live and he should just take her home to die, they told him they’ve never been able to save a child with the type of brain tumor his little girl has. Unable to accept his daughter’s death this man DROVE to Houston to see Dr. B. In true “Charlatan” fashion, Dr. B was honest and let the man know that his  little girl had maybe a 10% chance at surviving with his treatment but that he would do his best for her. The man and his wife knew the odds and decided to spend the 30,000 to try to save their child anyway. The child has severe brain damage from the radiation administered at ST. Judes.
Stories like these BLOW my mind, when he was telling us about his journey I almost broke down and cried right there in the parking lot.  It amazes me how people cling to life and still attempt to save those they love until the very end. I think about this little girl, I wonder what quality of life she will have if she lives, the radiation has damaged her brain so much that even if she survives she will not be “normal”. Her family doesn’t  care, they believe in miracles and they just want a little bit more time with their little angel. We all know the odds but we are all fighting for one more chance with those we love.

Listening to these stories is inspiring, you feel good when you go to the clinic because everyone is so upbeat. There is a sense of community in the waiting room, we are all family. There are situations that show you the disintegration of humanity. Then, there are places like Dr. B’s clinic, where you see the best in the human condition and the undeniable strength that lies within us all. We can all make a difference.








3 comments:

  1. Good Morning M&M's…
    I am in a shock and awwe state of disbelief right now!! I held such High Esteem for St Judes and the work they do or did……How very very sad that with so much time and money invested in their research that they are still using those old archaic forms of treatment when there is Dr B who has been doing this for some 30 years already!! WHY aren't they getting on board the "survival ship" and learning from a True Master? C'mon this man survived Nazi Poland after all!!! God helped Him out of that BAD situation so that he could go forth and help others out of their's!! An angel truly sent from God to help enlighten others as to his discovery about this whole "Cancer" diagnosis and treatment path. I can't tell you how shocked I am, that really was the first time that I have heard anything negative about St Judes and Marlo Thomas the Founders daughter was just on TV asking for more money as "no child is turned away for their inability to pay"? Maybe that is what made me feel so warm and fuzzy inside……I think that Dr B should have some sort of program for the less fortunate that also want to live…..not sure maybe he does? I am still stuck on the woman that was there and found that she couldn't afford the "treatment to live" and I think that was the saddest part of the blog in that she had a 3 year old at home. I am not sure why God chooses those people but I do know that it's His Game plan and we are not always aware of "His Bigger Picture"? I am off to shower and work and will be smiling all day knowing that MB is part of God's Bigger Picture and I have never been happier knowing I will meet his Miracle one day :-)……….<3 Peace and Love <3
    -Teresa-

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  2. Just to be clear, St Judes did treat this lil girl free of charge, but yes the methods they used to treat her rare brain tumor were not very updated, St. Judes has a 0 percent survival rate with these tumors in children, Dr. B has a 15% survival rate treating the very same type of tumor.

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  3. I am sure the treatment was Free but what good was that when they did more irreparable damage to her? Gosh, so exasperating!! I do so feel your frustration!! I currently have Kaiser and I am going to Ask my Dr What/When/Where and How!! I will let you know his answer!! BTAw, you cant get sued for Spreading the Truth. No Liable or Slander case there :-) I will go to Kaiser with you!! My mother was Misdiagnosed as well and it wasn't Kaiser, hence my distrust with Dr's in general. I can't believe that the Kaiser Dr that won't prescribe the drugs because they are Toxic doesn't realize that Chemo/Radiation do the same damage??? Take it to the Media-Brilliant!!

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