Fighting Stage 4 Leiomyosarcoma one day at a time

Hello Everyone,

Thank You for visiting, I initially started this blog to keep family and close friends updated on our journey to Houston Texas, to visit with Dr. Burzynski, a world renowned doctor, who specializes in cancer.

A year and a half ago, MB was diagnosed with stage 4 Uterine Leiomyosarcoma and given no more than a year to live.

MB is only 50, she hasn't seen any of her kids get married or have babies. She still has a thirst for life, three kids and a Husband who absolutely adores her. My sister is 23 and youngest brother only 17. We still need our Mama Bear. If you are, or were, blessed enough to have an MB like mine, who has always loved you unconditionally and supported you, you will know how we feel. Nothing can replace a mother's love. Nothing.

Because MB's cancer is very aggressive, we had no time to waste. The very same day the doctor told us to prepare for hospice, MB and I said, "Fu*k That!", Hospice is a dirty word at our house.We started applying to the Burzynski Clinic as soon as we got home from the doctors appointmet, after 3 days of collecting medical records and sending faxes we were finally accepted.We never took time to think, we just acted. No more than a week and half after we were told to go home and prepare for death, we were on a plane headed to Houston TX in search of life and a second chance. We've left California and our family during Thanksgiving.

Even though the treatment is crazy expensive and we are away from home during the holidays, this is still the best decision we ever made. Sometimes you have to bet big to win big!

We aren't the Kardashians, we are just the Vargas' and we are going through the "realest" hardest battle of our lives...This is our story....If you'd like to start reading from the very beginning click on November, on the lower right hand side of the page and the very first post is the "Adventure Begins"

Wednesday, November 23, 2011

KAISER KILLS!


100 dollars a pill, needs to be taken everyday!

My favorite, Afinitor, I call it the Vampire, each pill is wrapped because its damaged by light, ONE pill is 500 dollars and it has to be taken everyday, THIS ONE IS SUCKING THE LIFE OUT OF OUR FINANCES!
 
PB is the secret weapon developed in Burzynski's lab 4,500 a month for an unlimited supply





I always thought Kaiser was ok but then again I never had a life threatening illness. Not only do they not cover alternative cancer therapies they can't even be counted on to prescribe medications that have already been OK'd by another doctor. Did I mention my PB(Dad) pays 800 dollars a month for this piece of shit insurance company???

Today, I literally wanted to choke a bitch, excuse my language, but I'm pissed off. I had the most unsettling conversation with my Mom's uncologist at Kaiser. She said she felt uncomfortable following Dr. Burzynski's treament plan because it is still experimental. I don't get it, the dumb bitch is ok prescribing Hospice(the program where they send you to die), but she's worried about prescribing pills that could potentially save my Mom's life???? Obviously she's not concerned with my Mom THRIVING, she's just worried about costs.Here MB and I are, doing everything we can, paying out of pocket and the dumb ho not only doesn't help us, she decides to tie a sand bag to our feet. I am so MAD right now!

I forgot to mention that when I emailed the doctor about these very same medications, she at first agreed to prescribe them when she thought we were at MD Anderson, then, when she found out we were at Burzynski's clinic, she changed her mind and suddenly didn't "feel comfortable" prescribing the very same meds she had previously agreed to. I have the emails to prove it!

How on Gods green earth can we keep paying for these meds out of pocket? I'm going to give this dillema to God and have him work it out.


Posted by at

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)